Well hello
I went on a bike ride the other evening. I used to be able to bike 17 miles a day, at least 4 days a week. Now I can only manage 1.5 and I barely made that. My lungs felt like they were filled with rocks, and I couldn't get enough air into me no matter how hard I tried. I can't believe it got this bad after just a couple of months.
I am waiting for my pulmonologist appointment. My doctor referred me to some information to read online. One of the more depressing thoughts was
"Idiopathic pulmonary fibrosis has a poor outlook."
Well this is going to be fun.
The good news is my steroids and Malaria medications are helping greatly. I wake up and stretch, then I am good to go! Just a little burning in the joints when it is cold.
Addendum: I hate how the websites all talk about my lung disease as basically saying "there is no treatment, goal is to make the patient as comfortable as possible".
I had the best chicken sandwich ever over the weekend. I think a sammich is always better when a mom makes it.
No comments:
Post a Comment